# Newcastle Centre for Rare Disease

**Source**: https://www.ncl.ac.uk/rare-diseases/
**Parent**: https://www.ncl.ac.uk/undergraduate/

[Centre for Rare Disease](https://www.ncl.ac.uk/rare-diseases/)

- [News](https://www.ncl.ac.uk/rare-diseases/news/)
- Our People

[Logo](https://www.ncl.ac.uk/ "Newcastle University")

Centre for Rare Disease

- [About Us](https://www.ncl.ac.uk/rare-diseases/about-us/)
- [Our Research](https://www.ncl.ac.uk/rare-diseases/our-research/)

  [Our Research](https://www.ncl.ac.uk/rare-diseases/our-research/)
  - [Policy, regulation and social science](https://www.ncl.ac.uk/rare-diseases/our-research/policy-regulations-and-social-science/)
  - [Care delivery](https://www.ncl.ac.uk/rare-diseases/our-research/care-delivery/)
  - [Clinical trial design](https://www.ncl.ac.uk/rare-diseases/our-research/clinical-trial-design/)
  - [Basic research and diagnostics](https://www.ncl.ac.uk/rare-diseases/our-research/basic-research-and-diagnostic/)
  - [Translational and clinical research](https://www.ncl.ac.uk/rare-diseases/our-research/translational-and-clinical-research/)
  - [Funding Opportunities](https://www.ncl.ac.uk/rare-diseases/our-research/funding-opportunities/)
- [Our Disease Expertise](https://www.ncl.ac.uk/rare-diseases/our-disease-expertise/)
- [Our Collaborations](https://www.ncl.ac.uk/rare-diseases/our-collaborations/)

  [Our Collaborations](https://www.ncl.ac.uk/rare-diseases/our-collaborations/)
  - [Academics](https://www.ncl.ac.uk/rare-diseases/our-collaborations/academics/)
  - [Patients](https://www.ncl.ac.uk/rare-diseases/our-collaborations/patients/)
  - [Companies](https://www.ncl.ac.uk/rare-diseases/our-collaborations/companies/)
  - [Policy makers](https://www.ncl.ac.uk/rare-diseases/our-collaborations/policy-makers/)
- [News](https://www.ncl.ac.uk/rare-diseases/news/)

- [News](https://www.ncl.ac.uk/rare-diseases/news/)
- Our People

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## Our vision

We collaborate across disciplines for patient-centred impact and innovation. We improve therapy options, outcomes, and quality of life for people with a rare disease.

## Our mission

Newcastle has a stellar track record in rare disease research. We have benefited from decades of collaboration between the University and Newcastle Upon Tyne Hospitals NHS Foundation Trust.

We have united almost 100 experts from across these organisations to form this Centre. We have built on an ethos of robust patient partnerships. We will continue to improve the quality and impact of our work.

To learn more about our Centre and the work we are doing, we invite you to explore the webpages below or take a look at our new [Centre for Rare Disease brochure](https://www.ncl.ac.uk/mediav8/centre-for-rare-disease/files/Brochure for the Newcastle Centre of Research Excellence for Rare Disease.pdf) (PDF: 3.8 MB).

## Our goals

The main goals of the Centre are to:

- consolidate our expertise under a single entity
- maximise our opportunities for cross-disease and cross-disciplinary research
- facilitate external collaborations by highlighting our diverse expertise
- provide a single access point for our research and clinical care communities

[## About us

World-leading expertise in the rare disease field. Come work with us.](https://www.ncl.ac.uk/rare-diseases/about-us)
[## Our research

Driven by research goals and a patient-centred approach.](https://www.ncl.ac.uk/rare-diseases/our-research)

[## Our collaborations

Close collaborations for effective working in rare diseases.](https://www.ncl.ac.uk/rare-diseases/our-collaborations)
[## Our diseases expertise

Expert in research and care delivery.](https://www.ncl.ac.uk/rare-diseases/our-disease-expertise)

## Contact us

For enquiries or comments please email **[ncl.raredisease@newcastle.ac.uk](mailto:ncl.raredisease@newcastle.ac.uk)**

**Centre Leads**

Dave Jones\
Victoria Hedley\
Volker Straub\
Joris Veltman

**Our Steering Group involves our Leads plus the following experts:\**

Kenny Dalgarno\
Sophie Hambleton\
Neil Rajan\
Michael Wright\
Wyatt Yue\
James Wason\
Pauline McCormack\
John Sayer\
\

[About us](https://www.ncl.ac.uk/rare-diseases/about-us/)

[Our research](https://www.ncl.ac.uk/rare-diseases/our-research/)

[Our disease expertise](https://www.ncl.ac.uk/rare-diseases/our-disease-expertise/)